Archive for september, 2008

Update..

zondag, september 21st, 2008

Beste allemaal,

Op deze zondagmorgen even een update van de afgelopen week.
Zoals gezegd, donderdag 18 september naar Prof. Maertens geweest. Was niet ontevreden. Waarschuwde wel voor de verschrikkelijke vermoeidheid en daarin heeft ie wel gelijk. Onvoorstelbaar hoe plotseling die vermoeidheid kan toeslaan. Je kunt dan bijna niks meer. Trappenlopen gaat nog net, gewoon lopen moet je langzaam doen en na een paar uurtjes te zijn op geweest, ben je letterlijk ook ‘op’. Dan is het weer een tijdje rusten geblazen. Volgens zeggen zou alles langzaamaan beteren. Een dag of tien/veertien na de laatste radiotherapie moet de grootste vermoeidheid over zijn. Laten we daarop maar hopen, want zo is het niet echt leuk.

Op maandag 29 september as. mag ik naar Leuven voor de PET-Scan en op donderdag 2 oktober daarna heb ik dan een gesprek met Prof. Maertens over de uitslag. Toch weer spannend. Zeker om te weten of de Radiotherapie enig nut heeft gehad.
Het blijft toch elke keer weer een spannend geheel. Stiekem hoop je natuurlijk dat het nog een keer ten goede keer, ook al is die kans maar klein…

We houden je weer op de hoogte. Ik zou zeggen tot de volgende keer…

Ed
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Korte terugblik

zaterdag, september 13th, 2008

Beste allemaal,

Even een korte terugblik op de afgelopen tijd. Eerst even het medisch dossier lichten.
Sinds woensdag 10 september ben ik klaar met de Radiotherapie (bestralingen). De dokters waren tevreden met het resultaat tot nu toe, zoals ze het nu konden bekijken. Een echte PET-scan zal natuurlijk een beter beeld geven, maar het is toch weer even een opsteker. Toch voel ik vandaag onder mijn oksel toch weer iets dat volgens mij niet helemaal goed is. Donderdag 18 september heb ik een gesprek met Prof. Maertens en dan zal ik dat eens aankaarten. Ik blijf voorlopig onder controle en als er iets is, wordt er direct weer ingegrepen en dat is voor mij een geruststelling. Het blijft een spannende tijd voor ons alle drie. We hopen natuurlijk de tijd die ons nog rest zo goed mogelijk door te brengen en vooral zo lang mogelijk te rekken….

Genoeg medisch verhaal. Nu wil ik iedereen bedanken voor de komst. En echt elke dag heb ik bezoek gehad. Dat was heel hartverwarmend. Kreeg bovendien veel kaarten en bloemen. Het meest verraste me de bloemen van het Gemeentebestuur van Baarle-Nassau, De gemeenteraad van Baarle-Nassau en de CDA-fractie en bovendien nog een heel persoonlijke brief van burgemeester Hendrikx. Het waren alles bij elkaar hartverwarmende weken. Ik wil iedereen bedanken voor het bezoek en de attenties. Het heeft me enorm veel energie gegeven die weken. En ik moet zeggen, ik ben nog steeds enorm blij met elk bezoek. Nu ik niet elke dag meer naar het ziekenhuis hoef te rijden, kun je wat mij betreft gewoon lekker binnen springen. Je kent ons devies: Iedereen is welkom en de deur staat open! Heb geen schroom, ik ben gewoon aanspreekbaar hoor! En ik stel het bijzonder op prijs als je even binnen komt. Kunnen we gewoon gezellig kletsen over allerlei zaken. En zoals gezegd de deur staat OPEN!

Zullen we dan maar zeggen tot binnenkort?
Ed
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